My Alzheimer's Thread...

[Daryl]

It was my friend's funeral from the dementia group I was in when we were first diagnosed today...

He chose his own time to leave, like 'thunderstorm' did - and who am I to criticise them for doing it.

I hope he is now at peace x

[Daryl]

7th dementia anniversary
====================

Well... it is on this day in 2011 ( 7 years ago) that I went to the QMC hospital in Nottingham and was given the diagnosis of early onset Alzheimer's Disease (dementia).

I've been a long way, both physically and mentally, since that day, but I've gotten by with the love and support of my immediate family and a few very good friends... and the support of the majority of my friends here on the forums too.

I'm still active here... I intend to still remain active as long as I can even though physically and mentally it is getting a little more difficult to do.

...you won't get rid of me that easily! 

Thank you all for your support, it'll always mean a lot x 

[Daryl]

A Major update...

15 years ago, I was, as you were all aware, diagnosed with early onset Alzheimer's disease.

For all those that know me personally, you will have been aware that in December 2025, I had a stroke - and had to have a brain scan to determine what kind of stroke I had and where it had hit (I have had a lacunar stroke). 

In April this year I had an appointment at the dementia clinic - and the bombshell was dropped on me - I had been misdiagnosed with dementia! They stopped the medication I have been taking for 15 years and I was told I had a minor cognitive impediment. I was told I should be happy at the news...

Well I am, but I am also very angry and feel betrayed and let down... a quarter of my life wasted - watching loved ones die from dementia-related illnesses and thinking that was going to be me... my lad dying on his death-bed, scared that he was leaving me because I had dementia - and all along I hadn't!

I have been to see my MP, I am currently with a solicitor who has been advising me of the further steps I need to take - because believe me - I will not let this go unaddressed!

[altharic]

Sorry not as active on forums or Facebook since my wife passed and just saw this I'd be having a word about them feet too they left that go far too long and giving antibiotics too much is daft in itself because when the body needs them they are no longer effective.