My Alzheimer's Thread...

[Daryl]

Sixth year diagnosis anniversary...

It is six years ago today that I went to the QMC hospital in Nottingham and was diagnosed with early-onset Alzheimer's Disease.

But given the fact that I was put on medication for the condition straightaway, and also knowing what entails with this illness, I took steps to try and safeguard my future as much as I could, and got support care in place. It is needed now and has been increased to 6 hours... But I'm still here, able to type and communicate with you all, remembering the lovely friends that I have made on the FME forums and still moaning! And to boot, we have seen the release of the new MFME emulator which we all thought was going to be wishful thinking.

Here's to the next six - hopefully!

Love and peace,

Daryl x

[Marlon36]

Bless you Daryl and well done mate, you always have a positive attitude - inspirational.

It's always a pleasure seeing you post on these forums. I've seen when people are going through a rough time you will post some excellent advice. That's the kind of guy you are, fan-bloody-tastic!!

Long may you be posting for many more years to come! 

[Daryl]

Big update...

Just to let you all know - I shall be leaving 'BungalHome' and moving back to Kirkby due to my conditions not getting better (obviously) with better transport options nearby, much nearer my immediate family (next street) and also in familiar surroundings - because...

I'm moving back to Sycamore Avenue, my old street I lived on before I moved - and one number up - I'm going to be living at number 22 instead of 21...

How weird lol

Peace and love,
Daryl x

[Geddy]

All the very best young fella.  It will be good to be back home.  Hopefully one day I can make it back there...

[Daryl]

Spent my first full day in the new flat yesterday - my goodness it was hectic!
 
There from 8am in the morning waiting for the council landlords to switch on my supplies - only to find out that British Gas hadn't activated my account, as promised, four days before! They had to do it over the telephone for me, as the electric and gas engineer were none to happy with their shenanigans! 
 
Then I actually got on to my TV, internet and telephone at 9pm at night as Virgin Media had said with a callout that everything was in place for me just to connect my gear up - only it wasn't... they had forgot to give me the co-axl cabling to put in the back of the new connection on my Virgin Media equipment!
 
Anyway, all settled and went to bed, waking up with a start every now and again, wondering what the light shadows were that occasionally came over my bedroom (thought my dementia was kicking in) - only to realise that it was car headlights coming down the road opposite my bedroom window! 
 
I've lived a sheltered life in my old bungalow these past four years! 

[Marlon36]

Hope that you're settling well in your new flat Daryl, it's good that you've moved nearer to your family  x

[Daryl]

The bungalow had it's final inspection and passed... The keys to the place were handed to the housing inspector.

'BungalHome' is officially no more!

A little emotional - but onwards and upwards... I have a new home, right where it should be (with family and connections) and will dedicate as much to it as I did the bungalow!

Peace and love,

Daryl x

[Daryl]

What a day!

I'm going to write it down on Facebook for my own posterity - let alone tell you of officialdom incompetence...

First off - got a letter from Ashfield District Council stating that I hadn't informed them I had changed address and they had therefore stopped my council tax benefit - only in the next paragraph to be told that my housing benefit had been adjusted because I had changed address!

To top that off, I have had British Gas gas engineer visit twice today, along with Ashfield District Council gas engineer three times trying to sort my gas out - turns out my gas meter fitted just three weeks ago has stopped working and the council engineer couldn't put right an 'at risk' fault that had been passed previously by a council gas engineer and then declared at risk by British Gas - only to turn out the British Gas engineer had fitted an 'at risk' meter in the first place that had put my 'at risk' boiler faulty in the first place!

The end result... I still haven't got any gas because British Gas gas engineer has decided to cap off the new gas meter because it is 'at risk' until the gas engineer from the council has passed it as safe - that isn't until Friday!

...and I'm the one with dementia!!! 

[Daryl]

Sad news to report today...

My darling stepfather Mac has passed away after a very long illness.

He was 74 years old, bless him - he had dementia and has died of pneumonia.

Be at peace 'Dad' xxx

[Marlon36]

Very sorry to hear about your sad news Daryl. My deepest condolences to you and your family mate xx

[Daryl]

World Dementia Day today...

Don't forget! 

[Daryl]

I've buried my stepdad's ashes in the town's cemetery today...

Finally at peace, after a long battle with dementia and physical illnesses, so a blessing now we can move on.

Love him and miss him loads xx

[Marlon36]

Hope you're doing OK, Me Duck!

[Daryl]

Hope you're doing OK, Me Duck!

I'm doing fine... you know me  x

[Daryl]

Dementia Poem:
==========

Walk a while with me my friends, walk with me today.
Come and see what I see, and listen to what I say.

Yes, I have dementia, and sometimes it get worse.
Please be very grateful that you don't have this curse.

But are we all that different, the likes of you and me?
We breathe the same, we feel the same, the same things we all see.

The only difference is my friends, I don't feel that well.
When I don't remember everything that you tell.

My heart beats just as quick as yours, my blood runs just as fast.
But because of my dementia, a shadow it does cast.

It's the shadow cast by others, that takes away my light.
It turns my life into darkness, my pleasure into fright.

For when you cast that shadow, and it comes my way.
It drains me of my energy, makes me hide, or run away.

Sometimes I do things differently, and my mind is not my own.
But do YOU never talk to yourself, when you are alone?

So am I all that different, the likes of you and me.
So my friends, come walk a while, the future is you and me!