My Alzheimer's Thread...

[Daryl]

It was my friend's funeral from the dementia group I was in when we were first diagnosed today...

He chose his own time to leave, like 'thunderstorm' did - and who am I to criticise them for doing it.

I hope he is now at peace x

[Daryl]

7th dementia anniversary
====================

Well... it is on this day in 2011 ( 7 years ago) that I went to the QMC hospital in Nottingham and was given the diagnosis of early onset Alzheimer's Disease (dementia).

I've been a long way, both physically and mentally, since that day, but I've gotten by with the love and support of my immediate family and a few very good friends... and the support of the majority of my friends here on the forums too.

I'm still active here... I intend to still remain active as long as I can even though physically and mentally it is getting a little more difficult to do.

...you won't get rid of me that easily! 

Thank you all for your support, it'll always mean a lot x 

[Daryl]

A Major update...

15 years ago, I was, as you were all aware, diagnosed with early onset Alzheimer's disease.

For all those that know me personally, you will have been aware that in December 2025, I had a stroke - and had to have a brain scan to determine what kind of stroke I had and where it had hit (I have had a lacunar stroke). 

In April this year I had an appointment at the dementia clinic - and the bombshell was dropped on me - I had been misdiagnosed with dementia! They stopped the medication I have been taking for 15 years and I was told I had a minor cognitive impediment. I was told I should be happy at the news...

Well I am, but I am also very angry and feel betrayed and let down... a quarter of my life wasted - watching loved ones die from dementia-related illnesses and thinking that was going to be me... my lad dying on his death-bed, scared that he was leaving me because I had dementia - and all along I hadn't!

I have been to see my MP, I am currently with a solicitor who has been advising me of the further steps I need to take - because believe me - I will not let this go unaddressed!